Goodbye Dad

Our father, Charles George Stephanos passed away last night just three days short of his 97th birthday. He was a great Dad to his four boys, Kyle, Dale, Braun, and Tarn. Our father’s life was dedicated to his family and demonstrating his devotion to the principles of sound mind and body. He was an All-American swimmer in the Navy and Ohio State University. He met the young woman he would marry when they were both swim pros at a New York swim club. Years later in the early 1970’s, he and my mother created the New England Masters Swimming organization in our Swampscott living room. I remember being wowed by the two of them after they took a trip to the Masters Nationals in Chicago and came home with armfuls of gold medals.

 

My parents later created New England Swim School, with my dad as head coach and my mother as the stroke coach. They produced several national and collegiate champions, but more importantly, they created an extended family of sorts. There was always a swimmer or two at the house, and I came to fondly think of these people as itinerant family members.

After their divorce, Dad chose to heal through activity, running road races, marathons, triathlons, keeping his body and brain as sharp as possible. I remember thinking that he was creating a version of himself that would be too strong and vital to be hurt again. There were books strewn everywhere about the house. When he wasn’t reading or writing about swimming, running and exercise physiology, Dad was playing chess against a computer, or doing crossword puzzles, writing poetry, painting in watercolor, cooking Greek food, working in his garden.

 

Dad would gently challenge me during runs, announcing our pace per mile, suggesting we could squeeze a little more speed out if we tried. If my brother Braun and I suggested the idea of going skiing, He had no problem dropping everything and piling his sons and their friends into his orange VW microbus and heading off to New Hampshire or Vermont for the day. Whenever we went to art galleries, he’d lean in and tell me he could paint those pictures better and so could I (we couldn’t!). On the long drive back from our modest farm in Dalton, New Hampshire, Dad would spend hours talking with my youngest brother Tarn, creating the creepy tale of Bobby MacGregor. The two of them would often take bike rides from our childhood hometown of Swampscott up the coast to Marblehead.

 

Dad loved climbing mountains, and Mt. Washington was his North Star. Along with my brothers and friends, I’ve climbed Mt. Washington dozens of times with my father. Once, when I was around 10, we went for a hike on Mt. Washington, and it started raining and snowing, the temperature suddenly dropping. My brother Kyle’s and my feet were so frozen that Dad peeled our wet shoes and socks off and held our feet under his sweater against the skin of his bare belly, warming them while our foot gear dried by a fire. In Springtime, we would often hike to Mt. Washington’s Tuckerman Ravine to ski. He made the hours-long trek with a 45 lb. pack fun, seeming to sense just the right moment to produce a Snickers bar out of nowhere, or dryly roasting fellow hikers as we passed.

 

I remember the comfort of running mile after mile with my father after my mother left. We’d talk about everything and nothing. He’d ask me about my future— a subject I found terrifying— and he’d always find a way to be encouraging and supportive. I had no idea that my father was leaning into what he did best, coaching me along a very stoney path. His wife had just left him with four angry boys and a mother-in-law, but I never heard a bad word about Mum from Dad’s mouth.

 

Sadly, we drifted apart in the following years. My brothers and I did not connect with his second wife. I certainly had my part in the collapse of our relationship. I cut phone conversations short. We lived south of them, but his car only seemed to point North. As he crept into old age, his knees failed, and he refused to have surgery. He still swam 2 miles every day, but I’d get reports that he was crawling out of the pool and acting strangely.  Most of his days were spent sitting in a chair reading. He stopped driving. Our interactions were strained. He seemed confused, once asking me “how is our mother?” and making outlandish accusations. Dementia had taken hold. My father was disappearing.

 

He entered the VA Hospital in 2018 and never left. My father’s wife would not allow his sons to visit. We snuck in when we could anyway. He deteriorated bit by bit. By 2023, we had regained access to him via a sympathetic staff at the West Roxbury VA. He was non-responsive, in a persistent vegetative state. He’d had several strokes, suffered over a decade of dementia, and because he’d been lying in a bed for so long, he had horrifying wounds on his back side. Intubation turned to having a trach, which meant that he was sentenced to a ventilator permanently. A feeding tube and IV bags would be the source of nutrition for the remainder of his life.

 

I constantly advocated to anyone within earshot that this was not how he would have wanted to live, but no one who could do anything about it seemed to listen. He would spend the rest of his life in this tragically desperate state, plummeting in slow motion into a suspended existence that mocked everything he worked so hard to build. No matter how much the medical experts pleaded with his wife to accept that the treatment they were being forced to provide was inhumane, she steadfastly refused to allow him to meet the end of his life peacefully with dignity.

 

At last, his suffering is over. I loved my father, and I know he loved me and my brothers. I’ve been sad about our relationship for decades. Looking back, I try to edit out the fraught periods and concentrate on the positive, as he taught me to do on those runs together after the divorce. Today, when I’m running and the sun is just right, I see my father’s shadow, and I’m grateful he’s with me.

Godspeed, Dad.

Dad.

My 96 year old father, Charles George Stephanos, is lying in a VA hospital in the space between life and death, kept alive per order of his wife Louise refusing hospice or a DNR order or even the most effective pain killing medications. He’s had dementia for years, in fact the last time we spoke, he thought I was his brother and my wife was Hillary Clinton. Louise refused to allow my brothers and I to visit him after he was admitted to the VA hospital, claiming that he didn’t want to see us, and that our presence upset him to the point of endangering his health. I reflected on this one time when I snuck in to see him and he brightened as though waking from a dream, smiled and said “I can’t believe you’re here! I’m so happy!” After years of having to sneak around VA hospitals to see him, we finally found a sympathetic staff at the MICU where he’s been stored since August.

He’s on a ventilator, having had a tracheotomy after being intubated for a tortuous three weeks. Two weeks ago he had another stroke (an earlier one in August was the reason they moved him to where he is now), and pneumonia. He’s losing parts of his body due to infections.

Worst of all, he has fist-sized wounds that are index finger deep from infected bedsores on his rear end. They are “tunneling” wounds that only get deeper, and the nurses have to turn him and repack the dressings every few hours. Louise requested that he not be given pain medication that contains opioids, insisting on medications no stronger than extra strength Tylenol for the unimaginable pain he’s suffering. When I see him, he’s usually either drifting in a thick haze, grimacing in pain, or looking blankly around the room. All of this is to underscore that there is no quality of life or the opportunity for a dignified exit from a tormented existence for a man who was smart, talented, funny, and most of all, kind.

I visit my father several times per week and each time I approach the building, I find myself hoping he’s finally died peacefully and that his suffering will be over. I play him his favorite Greek song—Samiotisa, say the Lord’s prayer a few times, then just tell him about my day. I wish I could have a reasonable conversation with Louise and tell her that she has the chance to be the hero my father needs in this moment, the hero she claims she believes Jesus to be and give him the gift of a merciful, dignified end of life. But that conversation will never happen. After months of texting her to see how my father was doing (she agreed to communicate through text), she disconnected the phone. I’m sure that if I went to her house—the house I lived in as a teen—she’d call the police. At one point when my brother brought his family to see my father in the hospital, she became furious and told him she would not tell us when he dies. She hasn’t visited him once since he’s been in this MICU since August. The doctors have asked her to at least FaceTime so that she can see the condition my father is in, but she refuses. When asked if she could get someone to drive her to visit, she said that she has cancer, and so do all of her daughters. I know the various benefits checks she receives in his name would more than cover the cost of gas for the 50 mile trip.

It doesn’t feel good to draw him in such a vulnerable state, but I feel compelled to create a record of what’s being done to him. A few days ago, he was as present as I’ve seen him since this latest incident started. My wife asked him if he was Charles Stephanos, and he gave a short, quick nod. His eyes seemed to track weakly, and there are hints of light within. I don’t mistake those glimmers of light for the sunrise though. Instead, it feels like seeing the last glimpses of a man briefly surfacing between waves before being swallowed into the deep dark sea of eternity. The medical assistance he’s being given is mercilessly suspending him just below the surface, and the one person who can deliver mercy —his wife Louise, with her health care proxy authority—hasn’t even taken the time to visit and witness my father’s suffering.

Hartford MFA in Illustration

I started the MFA in Illustration at the University of Hartford this summer. Iy’s a low-residency program that consists of a two-week summer contact period, a week in a different city in the Fall, and another week in the Spring. In between we have assignments we need to complete. The Summer contact period was full emersion. Lots of new people to meet, tons of work, and little sleep. We visited the Norman Rockwell Museum and had the opportunity to hear some incredible guest speakers.

I loved it. Here are some photos:

Graduation!

I graduated summa cum laude from Southern New Hampshire University on April 30. This was a pandemic project started in April 2020. Many of us decided to make changes in our lives in those dark pandemic days, and I chose a project pointed towards hope. I graduated from high school in 1983 (should have been 1982, but I was determined to be the very worst student I could be. Nailed it!) and never thought I’d go to college. It only took four decades but I finally got around to it. In July I start in on a MFA program at the University of Hartford.


SNHU

In April 2020 during the dark days of the pandemic I decided that it would be a good time to finally work towards a degree.I’ve been teaching at the college level since 2014 and I quickly hit the paper ceiling as someone who never went to college. I enrolled in online classes at SNHU and I’ve been full gas in pursuit of my BA in graphic design for the past three years. I’m in my final few classes and I finally encountered a professor who really challenged me. Here’s the branding assess I created with a ton of help from Dr. Guido Alvarez. This guy kind of broke my brain. It was awesome. In July, I’ll be entering the Illustration MFA program at the University of Hartford.

Business cards. Dr. Alvarez urged me to have some kind of descriptive tagline other than “Illustrator”. I came up with “image Composer”. I don’t hate it.

A promotional booklet/portfolio leave behind. I think I’ll get a handful made up for targeted clients.

Beacon Hill

We lived on Beacon Hill for almost a decade back in the 80’s and 90’s. I loved just walking around in the evening and fantasizing about what life would be like living in one of those Bullfinch brick townhouses. I’ve been teaching at Suffolk University in the afternoons and evenings this semester and the sunsets I’ve seen after class are amazing. Here’s a shot of a beautiful little florist tucked into a side street off of Charles.

Society of Illustrators

It was nice being back at the Society of Illustrators last weekend after a pandemic induced break. My portrait of Jimi Hendrix was accepted and hung on the entry side wall, which was nice. Later in the evening I was absolutely astonished when the executive director, Anelle Miller, asked me if the Society could acquire it for their permanent collection. What an honor. It was an even bigger thrill to have my dear Bella accompany me to New York for the trip. We visited the Klimts at the Neue and the cast of A-listers at the Met. After the Society opening, we joined my friends Marc, Tim, Elizabeth, and Anelle at an amazing old-world New York steak house. It was an absolutely wonderful trip all around.

Portrait of Jimi.